Diagnose: heterotype peripheral neuroectodermal tumor (Askin tumor) of the fourth rib on the left, extensive stage, and right lung, vertebrae and lymph node metastases.
Necessary: six intensive polychemotherapy courses, radiation therapy and four post-operation polychemotherapy courses.
Sum required: 925,000 rubles or the therapy and stem cell transplantation
Select a currency for donation
Rubles: 925 000.00
Dollars: 28 730.19
Euro: 22 197.48
Still lacking: 666,237 rubles
Select a currency for donation
Rubles: 666 237.00
Dollars: 20 693.10
Euro: 15 987.87
Anya fell ill in March 2009. She was diagnosed with multiple sclerosis. This is a lethal disease of the nervous system turning the neural tissue into the connective tissue. This quickly spreads throughout the whole of the nervous system.
The girl has had to be hospitalised thrice over the past year. She has been treated with hormonal drugs. For this reason, Anya started gaining weight quickly. The girl had to string up her resolution to stop eating its favourite foods.
However, fleshing out was not the worse laying in store for Anya. She started losing control of her legs in February, coordination disturbance began, her handwriting changed and her hands started trembling uncontrollably. The girl could not move about on her own any longer and then got bed-ridden altogether.
The child’s condition is deteriorating very quickly. The coordination disturbance and the loss of sensitivity in the lower extremities are the signs of the looming terrible outcome.
Unless radical measures are taken, Anya will soon be unable not only to stand, but even sit as well. Other organs will fail one by one, and even swallowing will hurt the girl. The kid will be dying slowly in her mother’s arms.
Due to the quick progression of the disease, the doctors had to switch the tactics by abandoning hormonal drugs in favour of chemotherapy, a hardest method of treatment.
Immunosuppressive therapy with the use of immunosuppressants has been prescribed to Anya. The chemicals in this group will suppress hematosis and, hence, the immune reactions resultant from the disease. However, the same drugs disrupt the operation of the stomach, liver and heart and cause fever and other unpleasant and, at times, poignant side effects. Therefore, accompanying therapy drugs have been prescribed to Anya.
Doctors hope that immunosuppressive drugs will improve the girl’s condition. However, she might soon need even more potent chemotherapy drugs, because the recurrence is very probable.
Once chemotherapy has been complete, the stem cell transplantation is to follow. This is the only chance for Anya to be cured and resume normal life.
However, the further treatment of Anya is questionable, because such an operation, alas, is not on the list of operations paid for by the government. The treatment and transplantation would cost the girl 925,000 rubles.
Anya’s mother lacks the sum, just as she cannot bear seeing her daughter suffer any more, while being unable to help her. Anya is getting weaker day in day out, even though she is fighting her disease courageously. Anya’s boundless faith in people’s compassion is the only thing preventing her from losing her only hope for being cured.
Hopefully, the story of 16-year-old Anya will come home to kind hearts.
Abstract from the letter to UCOR:
"Please, render us financial aid to the amount of 925,000 rubles necessary for the stem cell transplantation operation. The only way out for my child is a stem cell transplantation operation. The clinic is ready to accept the gird any time, once the money is ready. We are unable to raise the money required. I am asking everybody to help me to save my child! Please, respond to our distress, help us, please!".
Additional documents and information:
The letter to the Union of charitable Organisations of Russia - letter text.
